Every day counts when it comes to Duchenne Muscular Dystrophy. Early diagnosis — ideally before symptoms become severe — can dramatically change the trajectory of the condition.
Yet in Kenya, the average age of diagnosis remains alarmingly high. Many children are diagnosed at age 7 or older, by which point significant muscle damage has already occurred. Some are misdiagnosed with other conditions, delaying critical interventions.
Why Early Diagnosis Matters
1. Earlier access to corticosteroids, which can preserve muscle function for years longer
2. Opportunity to begin physiotherapy before contractures develop
3. Time to plan educational and home modifications
4. Access to cardiac and respiratory monitoring from an early age
5. Family can receive genetic counseling for future planning
The Warning Signs
Parents and healthcare workers should be aware of these early signs:
- Toe walking that persists beyond age 3
- Difficulty keeping up with peers in running or jumping
- A waddling gait
- Using hands to "walk up" the body when getting off the floor
- Speech delay (sometimes associated with DMD)
What We Are Doing
Duchenne Foundation Kenya is training community health workers and pediatricians to recognize early signs of DMD. We conduct awareness campaigns in schools and maternal child health clinics. We also work to make genetic testing more accessible and affordable.
If you suspect DMD, request a CK blood test at your nearest hospital. A simple blood test can be the first step toward getting the right care.